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HomeNewsCoolum's Moonwalk festival returns to raise funds for rare disease

Coolum’s Moonwalk festival returns to raise funds for rare disease

Coolum Beach will once again shine under the full moon on Saturday 9 August for the 2025 Moonwalk for Our Moon’s Mission.

The event is a ticketed, family-friendly, inclusive festival raising funds to help cure SPG56, a rare and progressive neurodegenerative disease affecting local girl Tallulah Moon and children globally.

Held at Tickle Park from 2pm, the event will feature an afternoon of live music, inclusive entertainment, and a moonlit coastal walk.

Queensland music icon Tom Busby of Busby Marou will headline the event, supported by the soulful and captivating Jesse Higgins, and Australian Idol 2024 winner Marshall Hamburger, will be dropping in to sing a special tribute to Tallulah and her supporters, known as Tallulah’s Army.

The festival will also include a drumming circle, silent disco, face painting glitter bar, food trucks, and raffle prizes.

The Moonwalkers will walk together led by drummers at 5pm, along a pram and wheelchair-accessible boardwalk to Wilkinsons Point, symbolising unity, perseverance, and progress for rare diseases and rare families around the world.

Golden Whitrod, co-founder of Our Moon’s Mission and mother of Tallulah Moon, said this year’s Moonwalk comes at a pivotal moment.

“We’re so excited to be pushing toward clinical trial after all these years,” she said.

“This Moonwalk is about more than hope now – it’s about getting to the finish line. Every step taken on that boardwalk brings us closer to a cure not just for our daughter, but for children living with SPG56 around the world.”

This year’s event is proudly supported by the Sunshine Coast Council, Joel Hood Property, PNP Group, Bendigo Bank and local partners including Sunshine Coast Music and Events, Team Musicare, Peregian Beach Hotel, Sunshine and Sons and The Shop Coolum and who are helping create an inclusive and uplifting experience for all.

Funds raised will support the final stages of gene therapy manufacturing and the first-ever clinical trial for SPG56, expected to begin in late 2025.

Event Details:

What: 2025 Moonwalk for Our Moon’s Mission

When: Saturday 9 August, 2pm – 8pm

Where: Tickle Park, Coolum Beach

Tickets & Info: events.humanitix.com/2025-coolum-moon-walk-for-our-moon-s-mission-cure-spg56

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